Learning About My LD: Accepting My Challenges & Finding My Voice

October is Learning Disabilities/Dyslexia/Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month

Lena McKnight


Have you ever sat in a classroom and your teacher asks everyone to read a paragraph out loud? You skim through to see which paragraph has the easiest words to read out loud.

That was me. I was the young girl shaking in my boots when I knew I had to read out loud. Often, I would try to identify the “easy” paragraph, and if I couldn’t find one, I would make the class laugh by getting myself into trouble and taking the pressure off me. I was scared, although everyone thought I was the girl who didn’t fear anything and was tough. I was scared because I saw others do things that I struggled with. Middle school was hard for me. Not only was I dealing with social pressure, but keeping up with my academics was a lot of work in and of itself.

Have you ever just felt like you were different from others? Have you thought that people wouldn’t understand when you expressed your thoughts?

It was very hard for me share the challenges I was facing and explain what was going on for me. I always thought people would think there was something wrong with me. People still tell me, “you’re a tough girl, don’t sweat it.” As a young student, I didn’t talk about my struggles as a way to avoid embarrassment.

What I didn’t know back then was that I have a learning disability. I struggled every day with reading and processing issues. No one had explained to me what my learning disability meant. I had no idea that my individualized education program (IEP) could actually help me succeed. I couldn’t understand how I could do so well in my theatre classes but struggle in others.

Eventually, I fell so far behind in high school that I was not allowed to take any arts classes. I had too many academic classes I needed to complete if I wanted to graduate. So, I dropped out of school. I remember thinking that I would never get a GED (general equivalency degree). But with hard work and determination, I passed the GED exam after trying three times. I was so proud when I passed, and I wouldn’t believe it if anyone told me that I had a disability or needed extra supports after that to succeed. It wasn’t until college that I discovered I was still having trouble.

Soon after getting my GED, I began working at Harlem Children’s Zone. I was listening to the disability specialist speak about the problems high school students will encounter when they enter college. It clicked for me. For the first time, I was able to explain the challenges I faced and I admitted to the specialist that I had an IEP while I was in school. The specialist helped me get testing done so that I would finally be able to prove that I have a learning issue and could receive supports in college. It was like the world turned upside down. I was finally able to get the help I needed. I saw the “perks” of having a disability and getting the services I was entitled to. And, for the first time, I understood what it was I needed help with.

It took me a long time, but I have finally found my voice. I used to be ashamed to talk about my learning issues because I thought I was the only one who struggled, and I worried no one would believe me. But accepting who I am and taking the time to understand what I need has made all the difference. I was lucky to have advocates and people who believed in me. Because of them, I believe in myself and have achieved more than I once thought I could. I am grateful for the ones who stood up with me. Without them, I wouldn’t be who I am today, and I wouldn’t be working to empower others to speak up as well.

Every person with a learning disability deserves the chance to realize their potential and reach their dreams. Understanding yourself and being able to ask for what you need is the first and most important step.


Lena McKnight was born in Norfolk, Virginia and raised in Harlem, New York. She attended public school in New York City until 10th grade and later enrolled in a YouthBuild program where she achieved a High School Equivalency Diploma. Lena then went on to graduate with an associate’s degree and later a bachelor’s degree in Theatre and Sociology in May 2017. Lena has served as a Student Advocate for 10th graders through the Harlem Children Zone and remains involved with YouthBuild. She now works full time and devotes her career to serving kids in her community. Lena is committed to using her voice to have a positive impact on the field of education and on society at large.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

Way2Work: Helping Marylanders with Disabilities Transition into the Workforce

This is the final blog in a series of three blogs in October from the National Technical Assistance Center on Transition (NTACT) to honor National Disability Employment Awareness Month.


Way2Work Maryland logo

Way2Work Maryland is a project designed to improve the academic and career success of students with disabilities in Maryland through work-based learning experiences.

The project is open to any student with an Individualized Education Program (IEP) or a 504 Plan who will complete high school with a diploma or certificate in 2020.

The project focuses on helping students engage in paid or unpaid work experiences, aligned with their interests and skills, while supporting a student’s academic success to complete high school.

During the 2018-19 school year, seven Maryland counties engaged in the program for juniors and other students who are two years away from finishing high school.

The program is a partnership of the Maryland’s Department of Education, Maryland’s Division of Rehabilitation Services, the American Job Center Network, and the Department of Counseling, Higher Education, and Special Education at the University of Maryland.

The following stories highlight the work done by those Way2Work Maryland serves.

Rose’s Story

RoseRose has always loved animals. Dogs, cats, horses, sheep—she loves them all. So, when she met her job developer, Wayne from Humanin, a job development/ career placement agency, there was no question about what industry to place her in.

Wayne was quick to connect Rose with a volunteer job at Chesapeake Therapeutic Riding School in Maryland.

Even though Rose had never worked in a stable, she quickly became one of the center’s top volunteers.

“She comes in and gets right to work,” said Kathleen Schmitt, executive director and founder of CTR. “She always has a smile on her face.”

Rose has achieved proficiency in grooming and feeding the horses, mucking stalls, and performing general barn duties.

When Rose completes this work-based learning experience, she will be qualified to work as a trainee at a horse farm anywhere.

Lisa Miceli, Rose’s mom and biggest advocate, said, “I want her to keep coming here, even if she gets another job. It’s been such a great experience for her.”

Karli’s Story

KarliKarli dreamed of finding a job that would combine her three loves: photography, art and design. Her first work-based learning experience was heavy on the art, but light on photography and design.

Her new job at Silver Linings Lavender, which she got through Way2Work, has everything she was looking for, but it took a positive attitude to find it.

Karli’s first day on the job was the day of the Pride Parade in Westminster, Maryland, one of the busiest retail days of the year. Traffic in the small boutique on Main Street was non-stop all day.

“There was a line out the door. Products were flying off the shelf,” says Dawn Pritchard, Silver Linings Lavender’s owner.

Having Karli’s help that day was really important; she re-stocked the shelves as quickly as they became empty.

“I can’t sell product if it’s not on the shelf,” says Dawn. “That day, I didn’t lose any money.”

According to Dawn, “To be in retail, you really have to be an extrovert.”

Karli is a shy person, and interacting with customers wasn’t her favorite thing. After that first day, Karli thought, “I wouldn’t want to do this for a living.”

Not wanting to interact with customers in a store could be a problem for someone who is shy like Karli; however, there’s a silver lining.

Dawn opened Silver Linings Lavender in 2013 as an online store, but it wasn’t until September 2017 that she expanded into a brick and mortar store. The majority of her business is still online, and that’s where Karli shines.

Now, at Silver Linings Lavender, Karli is learning to do online marketing and using her love of photography, art and design in a retail setting.

Dawn gave her an office and a computer, with software such as Photoshop and InDesign.

It’s a win-win for employer and employee.

“I didn’t have anyone to teach me (about business),” said Dawn, “so I’m happy to share what I know and spread the word.”

Coardell’s Story

CoardellBy day, Coardell is pursuing a trade in welding at Worcester Technical High School. He doesn’t love welding, but it’s better than any of the jobs he’s had at MacDonald’s or Walmart, or washing dishes at a restaurant in Ocean City, Maryland

Outside of school, though, Coardell has other passions. He amazes audiences with his dance moves. He has performed in venues all over Maryland’s Eastern Shore as well as in New York, and he dreams of making a living as a dancer and rapper one day.

Someone with the soul of a dancer might feel restricted and confined in the tight quarters of a welding booth, and the protective gear that welders wear—including a heavy mask—might make it hard for a dancer to move his feet.

Way2Work helped Coardell get a job at Go Glass, a shop that specializes in residential, commercial and auto glass. At Go Glass, Coardell has room to bust a move now and then.

“I finally found something I enjoy doing,” he says.

In addition to having room to move when he has the urge, a crucial piece of Coardell’s success is his mentor, Jeffrey Sewell.

Having a supportive person to show Coardell the ropes and to nudge him when he gets distracted has meant the difference between floundering and feeling comfortable on the shop floor.

Jeff is teaching Coardell all about the glass business—how to cut and install auto glass, table tops, mirrors and doors. He’s also teaching Coardell how to make window and door screens for homes and businesses.

Coardell has learned how to use a tape measure, how to cut glass, and how to keep the blades sharp by storing them in auto coolant. Each time Jeff gives Coardell a little bit more responsibility, Coardell grows more confident.

“He’s a good worker,” said Jeff. “He comes in and gets right to work.”

Way2Work Coordinator, Tammy Hauck, said she knew the environment Go Glass would accommodate Coardell’s needs. “It suits him,” said Tammy. “It gives him more space to be himself.”

Tim’s Story

TimAfter just two months on the job at Avenue Tailor and Cleaners in Westminster, Maryland, Tim is already looking forward to a big promotion.

This summer, he will receive management training and take over as manager of the store’s Gettysburg, Pennsylvania location.

“Dry cleaning was never my first thought,” says Tim. “But it worked for me.”

Tim has always wanted to work at or own a shoe store, so his job developer, Megan O’Neill of Schapiro Training & Employment Program (STEP), a Carroll County, MD supported employment agency, thought the small business on Main Street might be a good fit. She was right.

The experience he has gained at Avenue is pointing him toward college and a degree in business.

Working two-three hours a day, five days a week, Tim drives the company vehicle and picks up and delivers dry cleaning in four locations around Carroll County, Maryland. In his new job, he will learn how to work the front counter, interact with customers and gain an insider’s view of the operation.

According to Tim’s dad, Brian Wall, the job at Avenue Tailor, for which Tim is paid, has made a tremendous change in Tim.

Brian sees his son being more engaged in school and having a more positive attitude in general. Tim even signed up for the SATs on his own to the surprise and delight of his parents.

“I wish Way2Work would have been available when I was in high school,” said Brian. “You can’t put a price tag on experience.”


The National Technical Assistance Center on Transition (NTACT), funded by the U.S. Department of Education’s Office of Special Education Programs (OSEP) and the Rehabilitation Services Administration (RSA), assists state and local education agencies, state vocational rehabilitation (VR) agencies and VR service providers in implementing evidence-based and promising practices to help ensure students with disabilities, including those with significant disabilities, graduate prepared for success in postsecondary education and employment.

Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

From Miami to New Jersey

October is Learning Disabilities/Dyslexia/Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month


Veronica and Myriam Alizo

Veronica and Myriam Alizo

When my first child was born I was a young and inexperienced new mother. My husband and I had just moved to the United States from Venezuela, and we were far away from our relatives.

I wasn’t sure if I should speak English or Spanish to our first daughter, and felt really perplexed. Everyone told us to stick to one language because children might get confused when they were spoken several languages at a time.

Once I realized my daughter had a speech delay and attention issues, I started to read everything I could about early child development. I felt very overwhelmed and isolated.

The pediatrician referred our child to an evaluation center in Miami where we lived. All our concerns and intuition were confirmed: our four-year-old child had some type of learning disability. The year was 1994, and I didn’t know anything about Individualized Education Programs (IEPs) or the Individuals with Disabilities Education Act (IDEA).

Veronica’s private speech therapy sessions were conducted in Spanish. Since we lived in Miami, a very bilingual community, the Spanish-speaking speech therapist recommended us to enroll our daughter in a bilingual cooperative preschool that existed in the community. The preschool teacher referred our daughter to our school district to have a series of tests. Then, Veronica had her first IEP. A few IEPs later, it was determined that Veronica not only had a learning disability, but she also had “pervasive developmental disorder not otherwise specified.” In other words, she had a form of autism.

When Veronica was in the fourth grade, I found a flyer in her book bag about an organization that would assist parents of children with IEPs understand their rights. That flyer changed my life!

The organization was Parent to Parent of Miami, a federally funded Community Parent Resource Center in South Florida. I contacted them and got all the information and assistance I needed at the time. Then, I decided that I wanted to work there! I wanted to help other parents, especially immigrant parents like me, understand their rights and get involved in their kids’ IEP process.

My lucky day came a couple of months later when I found another flyer in Veronica’s book bag. This time the flyer said that Parent to Parent of Miami was looking for bilingual parents of children with IEPs to work helping other parents. The year was 2000, I got the job, and I have been working within the Parent Center Network since.

Another big move awaited us, and we ended up living in New Jersey. As soon as I knew we were going to live in NJ, I contacted the SPAN Parent Advocacy Network, the New Jersey Parent Training and Information Center, to get information about the school system in our new state and to get a job or a volunteer position at the parent center. I started working at SPAN in 2003.

During my 15 years at SPAN, I have worked on several different projects from helping parents organize advisory groups to training parent mentors under New Jersey Parent to Parent to coordinating the OSEP English to Spanish Translation Glossary project to working on two national projects assisting parent centers across the regions.

My trajectory at SPAN has helped me empower my daughters to speak up, fight for their rights and have high expectations in their lives. It also has made me appreciate the impact of the civil rights and the disability movements in our society at the local and national level as well as globally as an international community.

Veronica attended a public high school in northern New Jersey where students with and without IEPs share the same building; and for most of the students, they also share classrooms and after-school activities. Veronica grew up in a naturally inclusive environment and was part of her high school basketball team. She participated in several SPAN transition-to-adulthood trainings and workshops. In addition to her high school academic courses, Veronica sampled jobs in the community, volunteered for several years at a summer camp for younger children in the spectrum, and learned to use public transportation as part of her IEP goals.

Now, Veronica is an adult who takes classes at the local community college and has a very active social life that includes a fiancée. Recently she got her driver’s permit and was admitted into the 2018-2019 New Jersey Partners in Policy Making cohort.

As for speaking English and Spanish with my daughters, I speak both languages with them, and it’s wonderful.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

Posted by
Center for Parent Information and Resources (CPIR) at the SPAN Parent Advocacy Network

Reflections on Where We’ve Been: A Mother and Son’s Journey with Dyslexia

Dylan and Nicola at the beach

October is Learning Disabilities/Dyslexia/Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month.

Nicola—a mom of three and an advocate—and her son Dylan, a college sophomore, share what has made their journey unique in hopes of inspiring others. Below, they take turns asking questions and telling their story.


Nicola: I want to start by sharing what I love most about my son. He sees the world in many dimensions. He is inquisitive, caring and creative. Traveling with Dylan is one of my favorite things to do because he sees the nuances and details of the culture, architecture, food and music wherever we are. He expresses genuine joy when experiencing new things. He is very social and adventurous, and people seem to be drawn to him like a moth to a lightbulb. But what I’m most proud about is that after years of struggling with an undiagnosed learning difference, and battling self-doubt, he is a sweet and curious guy and he has found strategies to deal with his learning and attention issues.

Nicola: Do you remember what it felt like for you when you started school?

Dylan: I remember being asked in first grade to write down my name and to describe something I liked. I didn’t know how to write or spell, so I wrote how they do in cartoons with just a scribble in a bubble on the page because that’s what I thought writing was. I felt defeated—like I wasn’t normal, and I didn’t know why. I didn’t like going to school because I felt different, but I did like seeing my friends. Everything seemed easy for them, and it was frustrating that they seemed to understand what the teacher was asking but I didn’t. I kept waiting for something to click.

Dylan: When did you first really know that I was having trouble learning in school? Was it in reading or writing? 

Nicola: When you were young, we knew you had some trouble when it came to sensory things, and we worried you’d be overwhelmed in a big school. So we started you in a small, private school with your brother, hoping that a small community would make you feel secure and you could explore your ideas.

You were very creative and bright, but when it came to writing and reading you avoided the tasks; you had difficulty writing your name, yet your vocabulary was advanced.

When we asked the school why there was such a disparity and to help us figure out what was going on, we were told that you were “all boy” and you had a late birthday, but you would eventually catch up.

I knew there was something else going on, but I didn’t know what it was.

Dylan: At what point did you finally have hope and think it would get better?

Nicola: When you were in the private school, they wouldn’t do an evaluation, so we had to get a private evaluation.

The first big moment was when we finally had a name for what you were experiencing—dyslexia and executive functioning challenges. There was finally a reason why you were having such a hard time in school. However, there wasn’t a roadmap or any guidance from professionals on what kind of intervention services would best help you.

We spent years and a lot of resources finding tutors and trying to get you the services you needed.

It wasn’t until you entered middle schools—this time to our neighborhood public school—that things really turned around.

Finally, the school was proactive. They were quick to complete a full evaluation and get to the bottom of what was happening. They worked with us to put together an Individualized Education Program (IEP) and get the right interventions in place. It was then—once they were able to provide the specific type of reading intervention you needed—that you started to make real progress.

Dylan and his family

 

 

Nicola: What do you think your biggest accomplishment so far has been? And what are your goals?

Dylan: For me, it is being able to retain knowledge at a higher level and overcome my struggles with writing and reading.

It’s hard because dyslexia never goes away. I still have to work twice as hard as my peers. Ironically, it has made me a better student, and I have been on the honor roll since 10th grade.

Taking the SAT and ACT was difficult, but I was still accepted into many colleges including Loyola Marymount in Chicago, University of Colorado, Colorado State University, San Francisco University, Syracuse University, Oregon State University, Temple University  and San Diego State University. Receiving those letters of acceptance made me feel that they valued my learning style and I had something important to offer.

In the future, I want to have a successful career that I enjoy and allows me to be creative. I am interested in design, and I can see taking my ideas into the world of advertising or clothing design.

What is very important to me is that I am surrounded by friends and family and never stop learning.

Dylan: What has been the best part of this whole journey for you?

Nicola: Even though it was hard to see you struggle and it took a long time to figure out how to help, the best part is that you taught me how to be an advocate.

You taught me that in order to succeed, you have to build partnerships. You can’t accomplish things alone, and if you don’t speak up then nothing will change. I have also met a wonderful community of other parents and educators who are passionate about children and a career that I love and never imagined doing.

Dylan: If you could talk to every parent who’s dealing with some of the same worries, what would you tell them?

Nicola: First, I would tell every parent to trust their instincts; if you feel something isn’t right with your child’s education then reach out to your teacher or pediatrician.

I would add that parents should get involved and know their rights. It is every child’s civil right to an education and because of the Individuals with Disabilities Education Act (IDEA) and the Rehabilitation Act, there are protections for your child.

If your child struggles with dyslexia, make sure he receives the correct evidence-based intervention services. Question everything, but also listen and learn. You don’t have to be an expert, but you do need to be an educated consumer.

Get involved, connect with other parents and educators, and create a team to work on the situation together. You can’t and shouldn’t do this alone.

Nicola: What’s one thing you want to say to younger kids who, right now, are where you used to be?

Dylan: The world isn’t built for us, but we shouldn’t conform to regular learning styles. You have a unique brain and you can use that brain to solve problems and come up with solutions that other people couldn’t even conceive of. When school is difficult, it doesn’t mean you should give up. It means you should try twice as hard and figure out a way to change the system. You cannot change the past but you can shape your future.


About the authors:

Dylan Frost is a sophomore in college, majoring in product design and development. He is an avid soccer player, ceramic artist, and world traveler when there is time. He is active in his fraternity and looking for an internship this summer in product design.

Nicola Frost is the Regional Field Manager (Colorado) for National Center for Learning Disabilities (NCLD). Prior to becoming an advocate, she was an Emmy-award winning producer for the Food Network and directed documentaries. Her passion is in civil rights for all underserved communities. When she isn’t advocating she is biking the Rocky Mountains and kayaking with her family.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

Dylan
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College sophomore majoring in product design and development
Nicola
Posted by
Mom of three. Regional Field Manager, National Center for Learning Disabilities (NCLD)