Autism—A Family’s Journey and the Lights Along the Way

Note: April is National Autism Awareness Month.

Carolyn Hayer with son Chris and their family

Carolyn Hayer with son Chris and their family


Carolyn Hayer is the Director of Parent and Professional Development at the Statewide Parent Advocacy Network (SPAN) in New Jersey, a federally funded Parent Training and Information Center.


Autism.

There was a time when I couldn’t even say the word out loud. It was too painful, too devastating to utter. I wanted to believe that if I didn’t say the word, it didn’t exist. But it does exist; it’s real, and it’s beautiful, and it’s challenging all at the same time. And whether I say the word or not, my son Chris has autism.

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Project HEART:
Heightened Excellence in Autism Research and Training

Note: April is National Autism Awareness Month.
Heart-shaped cloud

Autism Spectrum Disorder (ASD), a neurodevelopment disorder characterized by social communication delays and rigid and repetitive behavior, affects an estimated 1 in 59 children in the United States. The majority of these children receive intervention in inclusive public school settings where school systems are stressed by the dramatic increase in the number of individuals receiving special education under this classification.

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Another Journey

Note: April is National Autism Awareness Month.

The Bae family during trip to England

The Bae family during trip to England

Just like any other school day, Eugene, my son with autism, left on the bus this morning to go to a day program provided by our school district. For the last 20 years, he and I wait for the bus by sitting on our front porch. As he steps on the bus, he shouts at me with his happy high-pitched voice, “Bye Mom!” This is our ritual to begin each new day, to meet that day’s challenges, emotions, promises, and hopes.

In June this year, he will age out from the district program. I cannot help being emotional whenever I think about his first day of preschool and the journey that Eugene and our family have been on since then. On that day, I cried in the car for two hours after separating from my miserable, crying child.

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Evidence-based Practice and Autism

Note: April is National Autism Awareness Month.

Evidence-based Practice cake


Katie is an 18-month-old who does not respond when her mother calls her name, likes to watch spinning objects, and does not use words or gestures to communicate.

Jose is a 17-year-old student who gets stellar grades in all his courses, started the cyber security club in his high school, but he does not have anyone he can call his friend.

This toddler and teenager reflect the continuum of abilities and disabilities that is autism spectrum disorder (ASD).

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Project ASD: Special Educator Preparation in Autism Spectrum Disorders

Note: April is National Autism Awareness Month.

Supporting Children and Youth with Autism

April is Autism Awareness Month, and a perfect time to highlight the OSEP-funded Project Autism Spectrum Disorders (ASD) at the University of Central Florida (UCF). Since 2004, this innovative personnel preparation project has been addressing the critical need for special educators prepared to serve the increasing numbers of children identified with ASD. A nationwide listing of teacher shortage areas revealed 48 states reporting shortages of special education teachers for the 2016–17 school year, with many states identifying the specific need for special educators prepared to serve students with autism.

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Eleazar Vasquez III, Director and Associate Professor for the Toni Jennings Exceptional Education Institute
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Director and Associate Professor for the Toni Jennings Exceptional Education Institute
Cynthia Pearl
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Faculty Administrator in the Exceptional Education Program
Matthew T. Marino, Professor in the Exceptional Education Program
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Professor in the Exceptional Education Program