It might seem surprising for two moms from two different states, thousands of miles apart to have a deep connection, especially when we’ve hardly even spent time in the same room together. But in a powerful way we’ve bonded, like so many other engaged parents across the country, due to our children’s dyslexia and other learning disabilities.
Our connection is based on a shared truth—the need to feel like we’re part of a community and the desire to make a difference for many children just like ours.
We’ve also learned that we can give hope to others when we tell our stories:
My 8th-grade daughter was not identified with dyslexia until the end of 3rd grade, after struggling in school for years. As I sought help for her at school, I was often told that I needed to accept her status as a flailing student. But my instincts told me not to. I somehow knew my child could do more.
It was not until we finally received an identification of dyslexia, dysgraphia and Attention Deficit Hyperactivity Disorder (ADHD), and got appropriate accommodations and private dyslexia tutoring in place that the fog literally lifted. One accommodation we made for my daughter who has difficulty spelling, was an adjustment to her assigned spelling list to include the words she was working on in her reading intervention. Suddenly she became a different child. She didn’t dread going to school anymore. Her headaches stopped, her anxiety lessoned. She was actually smiling and laughing again. Today she is in the honors reading class and on the road to her dream career—a doctor. She knows she has a bright future.
I was educated as a teacher and spent many years working in the classroom. I thought that I knew how to help a struggling child learn to read. But I quickly discovered as my daughter spiraled downward that I was not equipped to help her. My daughter needed a teacher who could teach her to read the way she learns. Now, I work with many parents as part of Decoding Dyslexia, a parent-led grassroots movement. We collaborate with partners in Maryland and D.C. to advance teacher training and raise learning disability (LD) awareness. Our goal is to ensure that children like my daughter don’t fall into the gap and that educators can have all the tools they need to help students like my daughter.
I didn’t know just how many children were affected by dyslexia, dysgraphia, ADHD and other disabilities until my own kids were identified. It was when my two children first began facing challenges and obstacles at their Texas public school that I became a champion for my children and the many others with learning and attention issues. By educating myself through online resources and connecting with parents of children who have learning disabilities, like Lisa and many others, I learned how to become an effective and collaborative advocate.
I also learned the value of telling our story. I began to write, tweet and speak about not only my family’s negative experiences, but—more importantly—the triumphs and victories as we saw our local school district engage with parents, listen to our concerns and begin to change.
Positive change is contagious. And talking about it is the catalyst. Every day in my role with the National Center for Learning Disabilities (NCLD) I get to engage with parents who are change-makers alongside educators, researchers and policy makers in their community. I get to help parents tell their stories and highlight the collaborative work they are doing to improve teacher training, implementation of federal and state laws and to keep the bar high for students with LD.
Best of all, I get to connect parents to national-level work and policy efforts that are helping to educate and inform everyone about what children like ours need to succeed.
Engaged parents are a key catalyst within our public schools to help educate, create awareness and raise expectations for kids with learning disabilities. As two moms who have connected through our children’s shared experiences, we encourage you to get involved, too.
We encourage you to get involved! Here are some resources to help you get started on collaborative change work in your child’s classroom and beyond.
- National Center for Learning Disabilities (NCLD)
Working to create a society in which every individual possesses the academic, social and emotional skills needed to succeed in school, at work and in life.
15 nonprofit organizations that have joined forces to support parents of the one in five children with learning and attention issues throughout their journey.
- Decoding Dyslexia
A network of parent-led grassroots movements across the country concerned with the limited access to educational interventions for dyslexia within the public education system.
- Parent Camp USA
A hybrid “un-conference” opportunity for parents and teachers to come together and level the playing field, putting all stakeholders in a circle for actual, face-to-face discussion about what is best for kids. At the U.S. Department of Education in Washington, D.C. on 10|26|2015.
- Center for Parent Information and Resources (CPIR)
A central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Thank you both for sharing your stories and encouraging others!
Question for the webmaster/content manager of this site:
Can someone get back to me regarding the criteria that the OSERS follow in determining what posts to post on its website?
I am with the Laurent Clerc National Deaf Education Center, a federally funded program that is monitored by the US Dept of Education and am looking for ways to make our website and Info-to-Go (clearing house site) to be more user-friendly and be informative to our targeted audiences. Talking with someone about this topic and the criteria/guidelines would be helpful. Thanks!
Hi ladies… I totally agree, kids with dyslexia needs a teacher who could teach them the way they learn….
Just found out my 11 year old has dyslexia and adhd. She is failing in school. It’s very hard for her to keep up in 6th grade with different classes and different teachers. We left public school three years ago, home schooled for three years thinking she just needed some time to learn at her own pace and she would catch up unaware that she was dyslexic. But we didn’t move forward as much as I had hoped. We were still behind and thought maybe she wasn’t getting in the school hours needed for reinforcement of her academics. So we started 6th grade in a private school thinking smaller classes would help but still having Ds and Fs . Finally we were able to get an appointment in another city to get her tested for dyslexia. In 6th grade she tested below first grade in phonic awareness. We were devastated . She had fallen so far behind because we were unaware of her condition. Now we are on our search for intervention programs to help this very bright little girl learn to read better and be all that she can be. Thank you.
Lisa and Lyn – Thank you!
My family and I are grateful for your voice and words, which continue to help us find and strengthen our own.
Thank you for your part in propelling this outstanding national community of agencies and families toward appropriately high expectations and beneficial outcomes for all learners.
I feel blessed to witness the national changes in progress thanks to grassroots efforts such as yours. My family thanks me for successfully advocating on behalf of our two 2e kids, but they know I’m successful because of persons like yourselves who’ve helped this national movement come to fruition and maintain momentum.
Thanks, too, to Dr. Musgrove of OSERS and Dr. Rodriguez of Connecticut. Your focus on and belief in meaningful parent engagement truly is the key to teacher support, student learning progress and community prosperity.
Lyn – I love these lines: “Positive change is contagious. And talking about it is the catalyst.”
With so much gratitude,
All children have the right to a good education, and it is up to our school systems to provide for equal education.
Very empowering! Thanks for sharing your family’s story.
Thank you both for being dyslexia champions for not only your children but all children with dyslexia. Being able to Say Dyslexia is in our schools is the first step in a journey to better literacy in our nation.