A Look at the Past and a Vision of the Future—IDEA at 40

Guest Author: Jim StovallCo-Founder and President, Narrative Television Network 


As we celebrate and contemplate the impact of the Individuals with Disabilities Education Act (IDEA) over the last 40 years, we must consider not only where we are but where we’ve been and, more importantly, where we’re going. The technological breakthroughs and marvels that we experience here in the 21st Century have changed our world and changed the way we all live. Among the innovations that would most shock and bewilder our ancestors would be the proliferation of visual images that we experience. A few generations ago, a black-and-white snapshot was a prized and treasured family possession. Today, we routinely carry with us smart phones and other devices that put digital photography and videos at our fingertips.

At its best, technology is the wondrous tide that lifts all boats, but at its worst, it can create an ever-widening gulf between the mainstream population and those individuals dealing with disabilities. If a picture is, indeed, worth a thousand words, a video is certainly worth a million words. The following brief example will allow you to experience the opening of a movie just as a blind person does, but it won’t leave you in the dark as then you will see a second sample video that will provide the solution that is being experienced by millions of people around the world.

www.narrativetv.com/sample_films.html

Nowhere is the need for this life-changing accessibility greater than in the classroom. Description is simply the process of making the visual world verbal. When done well, it is the key to unlocking the door to educational opportunities for countless blind and visually-impaired students across the country.

The U.S. Department of Education, through description grant projects, has linked the creators of the best educational videos available anywhere with production organizations that create description and made it possible for this dynamic partnership to impact visually-impaired students.

As the founder and president of a company dedicated for over a quarter of a century to creating accessible educational programming, I am obviously committed to description, but my true dedication stems from the fact that I’m a blind person myself. I’ve experienced the educational process as a fully-sighted person through my elementary years, as a visually-impaired/partially-sighted person during my middle and high school years, and as a totally-blind person through much of my college experience. It remains almost impossible for me to fully describe to sighted people the impact of description.

In a survey conducted in conjunction with the American Council of the Blind, it was revealed that fully 99% of the blind and visually impaired individuals supported description and wanted more of it. I realize it’s almost impossible to imagine 99% of any group agreeing on anything, but if you will consider what the response might be to a survey of fully-sighted people if they were asked whether they were in favor of having the availability of television, movies, and streamed video programming, you can begin to understand what description means to the visually-impaired population in the educational process and in the world beyond.

In a study conducted in cooperation with National Geographic Television involving visually-impaired students, their parents, and teachers, it was revealed that the comprehension for blind and visually-impaired students approximately doubled when the educational programming had description. In an educational landscape where dedicated professionals struggle to get a one or two percent improvement, these results are overwhelming.

The impact of description extends beyond accessibility for visually-impaired students and includes students with learning disabilities, those learning English as a second language, and the general school population. An elementary teacher, Gail Patterson, whose class participated in the National Geographic study, may have put it best when she said, “The students and I were very excited about viewing the documentaries with description. Truthfully, I think added description would be helpful to not only visually impaired students but to other students as well.” But as is often the case, if you want to know what’s best for students or most compelling to them, you need to simply ask the kids. Brian, a visually-impaired middle school student, said, “I think described movies are a miracle for kids who can’t see the television screen!”

Hanna, a visually-impaired high school student, said, “I am blind, so it is a real benefit to have description. I wish that audio description was as popular as captioning.” P. Killius, an accessibility advocate in New York, said, “My friend is writing for me. I am blind. I am employed teaching self-advocacy to the physically challenged. Never in my career have I been so pleased about anything as I am about Narrative Television Network. Your dialogue allows the unsighted to really understand every little nuance that until now could only be enjoyed by those with sight. A whole new world has been opened to us.”

As an author myself, I have felt the satisfaction of having six of the novels I have dictated produced as major motion pictures and enjoyed by millions of people around the world. This feeling of satisfaction pales in comparison to the experience of turning existing movies, television shows, educational programming, and other visual media into accessible described programming in which the narrated words we insert come to life in the theatre of the mind within blind and visually-impaired people.

Through grant funding from the U.S. Department of Education, we are not only able to give blind and visually-impaired students access to visual material, but it gives them access to a real education and, therefore, the whole world.

Jim Stovall, Co-Founder and President, Narrative Television Network
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Co-Founder and President, Narrative Television Network

IDEA Changes Lives: My Experience with Early Intervention

In honor of the 40th anniversary of the Individuals with Disabilities Education Act (IDEA), I would like to share with you my story of how Early Intervention helped my family and me.


My name is Kelly and I am the proud mom of 9.5 year-old twin girls. They are happy, healthy and growing!

It wasn’t always this way. They were born premature. Their birth weights were 3.02 pounds and 3.15 pounds. Megan did a 3 week neonatal intensive care unit (NICU) stay and Mackenzie 2.5 months. Upon discharge the nurse said, “We called Early Intervention (EI) to come and work with you and the girls.” I was in such a haze; I said, “Ok, great.”

A week later, after our appointment had been confirmed, four people showed up at my house – an occupational therapist, physical therapist, Developmental Specialist, and Director of my local center. They explained the program to me and answered all my questions. We had a long road to get the girls to where they should be. Each week my team would come and work with me, the girls, and my husband. They helped us read cues, strategize sleep problems, and showed us exercises we needed to help the girls grow. We had many, many appointments with the doctors that EI helped me with. We were with the program for a full three years. As I got more comfortable and more involved with each session, I was asked to participate in a parent program for parents. I attended the seminar by way of the Parent Leadership Project (PLP) in conjunction with Massachusetts Department of Public Health (DPH). It was life changing for me.

I met amazing people, heard profound stories and felt like I wasn’t by myself in this. After attending I wondered if every family getting EI or not could have a feeling like I had at the seminar – to feel included, empowered, and ready to do what needed to be done. With help from the PLP, I started speaking at public hearings, EI staff meetings and trainings, and other venues. I shared my story with the people that needed to hear it most. As time progressed, I was appointed to the Massachusetts Interagency Coordinating Council (ICC) as a representative for Boston. This was so meaningful for me. I could connect with EI providers, doctors, DPH staff members, and other parents and help other families in my community. Soon my time was over as an ICC rep, and from there I have attended and helped many other families with Individualized Education Programs (IEP), special education laws, placements and other issues surrounding special needs and education. I have become a better mom, advocate and community member as a direct result of my involvement with Early Intervention, PLP and DPH. I use the skills I learned from PLP to advocate for my daughter, now in 3rd grade. I also use the skills Early Intervention taught me when I meet with doctors and in my personal life and business life. I am forever grateful to the EI staff who believed in my family and me.

Now, my children attend a charter school in the City of Boston. My daughter, who is in an inclusion classroom, is doing amazing! She can self advocate for her needs and loves school. The school works with me, her doctors, and psychologists so we can all agree on her needs for the classroom. Her twin sister also attends the same charter school. She is doing amazing as well! She sings in the choir, plays baseball and has a lot of friends. She is known as the social butterfly. Looking at her and back at her early days, I can’t help but be proud and grateful that this preemie girl is thriving! At one time everything was a struggle for her, and now it comes with such ease. This is all because of Early Intervention.

Now and Then, An Early Intervention Story” by Kelly Coyne.


Posted by guest blogger Kelly Coyne, the proud mom of 9.5 year-old twin girls.

 

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Kelly Coyne is the proud mom of 9.5 year-old twin girls.

IDEA Changes Lives: Forty Years of Parent Training and Support

2015 marks the 40th anniversary of the Individuals with Disabilities Education Act (IDEA). In the same year, the first center to help parents understand IDEA and how to advocate for their children with disabilities was born.

The first center received funding after Harvey Liebergott, then director of the Recruitment and Information Program, Bureau of Education for the Handicapped of the U.S. Department of Health, Education and Welfare, met Martha Ziegler, director of the newly formed Federation for Children with Special Needs in Boston, Mass. Martha was a key parent leader who worked to pass the Massachusetts’ special education law, which in turn influenced the federal law. Martha had an idea for a walk-in parent information center.

In an April 4, 1975 letter to Martha providing funds for a pilot center, Harvey wrote, “Although we are not yet ready to commit ourselves to the funding on a long term basis, we would like to find a way to fund your proposal for the short term as a pilot for a period of six months to begin to implement a systemic method to do information and referral with follow-up…And in thinking of the long term, we do not anticipate funding projects for more than three years, establishing some basis for the centers to survive once federal support has ended. We estimate it will cost about ten million dollars to maintain comprehensive information and referral centers nationwide.” In an April 10, 1975 letter, Martha accepted the challenge of creating the pilot center, saying, “We expect to make some false starts…the essential point is to develop a working model.”

Forty years later, Martha’s commitment to providing parents with information and training has led to a large network of federally funded centers. Parent Training and Information Centers (PTIs) provide services to families in every state, the District of Columbia, Puerto Rico, and the Virgin Islands. Federal investments in parent training and information grew to include Community Parent Resource Centers (CPRCs) that serve parents in the most need of information and training in 30 communities as well as technical assistance centers that help parent centers provide the best information and support to families.

Harvey spoke at Martha’s memorial service in October 2014, saying, “She prodded and assisted everyone who could help. Martha saw the other organizations as allies, not competition. And she had lists of every relevant advocate and every constituency, with their needs and goals. Martha’s pitch was simple: all of the other groups included disproportionate numbers of children with special needs. She intended to support them and hoped that they would support her. They did. In Washington, Martha worked both sides of the aisle, and became a driving force in writing and passing and implementing virtually all of the important disability legislation of our time.”

The work that began in April 1975 continues every time parent centers develop the next generation of parent leaders and self-advocates. Martha’s legacy endures when families and professionals work tirelessly together to fulfill the promise of IDEA to improve “educational results for children with disabilities [as] an essential element of our national policy of ensuring equality of opportunity, full participation, independent living, and economic self-sufficiency for individuals with disabilities.”

Contributing writer: Rich Robison, Executive Director, the Federation for Children with Special Needs

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Carmen M. Sánchez is an Education Program Specialist with the Office of Special Education Programs, U.S. Department of Education