Helping Youth Meet Their PROMISE

PROMISE: Promoting the Readiness of Minors in Supplemental Security Income

What is PROMISE?

Promoting the Readiness of Minors in Supplemental Security Income (PROMISE) is a five-year research project that advances employment and postsecondary education outcomes for 14–16 year old youth who receive Supplemental Security Income (SSI). PROMISE began October 1, 2013 and will continue until September 30, 2018. The program is an interagency collaboration of the U.S. Departments of Education, Health and Human Services, Labor, and the Social Security Administration. Under this competitive grant program, state agencies have partnered to develop and implement model demonstration projects (MDPs) that provide coordinated services and supports designed to improve the education and career outcomes of children with disabilities receiving SSI, including services and supports to their families.

2017 represents the fourth year of the projects (the first year was primarily dedicated to recruitment and enrollment). Thanks to the ongoing efforts to support families and youth, we look forward to hearing about bright future outcomes for the thousands of youth and families being served by PROMISE.

Further information is available at the PROMISE TA Center:

PROMISE TA Center logo

 

PROMISE Success Stories

Model Demonstration Project Success Stories

The PROMISE MDPs were created to facilitate a positive impact on long-term employment and educational outcomes by reducing reliance on SSI, providing better outcomes for adults, and improved service delivery by states for youth and families receiving SSI. The six MDPs are comprised of 11 states:

Under the Workforce Innovation and Opportunity Act (WIOA), projects are coordinating with vocational rehabilitation agencies so that youth are receiving pre-employment transition services, to include paid employment. By April 30, 2016, the MDPs recruited a total of 13,444 youth and their families with half of them receiving intervention services targeted around improving outcomes in employment and postsecondary education.

Personal PROMISE Success Stories

Cody—a Youth with Promise

Wisconsin PROMISE

Cody is excelling as a student at Burlington High School and employee at McDonalds. He plays video games, rides bike, and is learning to drive and weld. His goal is to be a welder after college. Cody was born with a brain tumor and has just one hand, but that’s not stopping him.

He’s a youth with Promise, on a journey to achieve his personal, educational, and career goals.

Watch Cody’s story on YouTube.

Xavi’s Story: Youth with Promise

Wisconsin PROMISE

She’s like most #teenagers… she hangs with her cats, dances with her friends, and loves Criminal Minds. She’s also going to have a lung removed. She’s a youth with Wisconsin Promise, on a journey to achieve her personal, educational, and career goals. Xavi shares her dreams, challenges, and the steps she’s taking with Wisconsin Promise to plan for her future.

Watch Xavi’s story on YouTube.

Dorian Shavis—A Firm Foundation

Arkansas PROMISE

As someone who expressed an interest in architecture, one of the Arkansas PROMISE youth participants expressed his desire to work at an architectural firm. Working with the local workforce board, Arkansas PROMISE staff set up an interview with a local architectural firm and secured an internship that resulted in the PROMISE youth and the firm staff learning from one another.

Watch Dorian’s story on YouTube.

More PROMISE Success Stories

You can find many more PROMISE success stories at:


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

“Voices from the Field” Interview with Lillian Durán,
 National Center on Improving Literacy

Lillian Durán standing in front of a school

Lillian Durán

Lillian Durán, Ph.D., is an Associate Professor in the Department of Special Education and Clinical Sciences at the University of Oregon. Her research is focused on improving instructional and assessment practices with preschool-aged dual language learners (DLLs). Dr. Durán leads National Center on Improving Literacy’s (NCIL) work on creating and translating resources for DLLs, and provides expertise on the topic of recommended practices in assessment and intervention with young DLLs with and without identified disabilities. Prior to Dr. Durán’s work in higher education she worked for 9 years as an early childhood special education teacher. 


ED:  How did you begin your career in early learning and early literacy?

Lillian:  I started my career as an early childhood special education (ECSE) teacher in Prince George’s County, Maryland. I was hired without special education licensure to teach a self-contained special education preschool class that was deemed “cross-categorical,” meaning the children all had disabilities but the type of disability varied by child. Around this same time I enrolled in a master’s program at George Washington University. I eventually became licensed and graduated with a degree in ECSE.

My next job was working with an early intervention home visiting program in rural Minnesota. We worked in home settings with infants and toddlers with identified disabilities, birth to age three, and their families. Many of the families were native Spanish speakers. Through this work, I started to become very interested in young dual language learners (DLLs). I grew up in a multi-lingual house. My mother was German and father Mexican, so I grew up learning and speaking 3 different languages and always saw the value in being multi-lingual.

I was surprised at the number of Spanish speakers in rural Minnesota. Many were agricultural workers and in some of these rural districts 30–50% of the families were Latino. I started helping these rural school districts by conducting Spanish language assessments, which piqued my interest in DLL assessments and literacy. I ended up enrolling in a doctoral program and working with Scott McConnell, at the University of Minnesota, who developed the Individual Growth and Development Indicators (IGDIs) to measure preschool literacy. The focus of my doctoral work was on

  1. assessment and intervention with DLLs whose home language was Spanish and
  2. second language acquisition.

I have been an associate professor at the University of Oregon’s Special Education Department for the past two years and last year had the opportunity to join NCIL.

ED:  What efforts have you and NCIL been involved in to improve the quality of early learning and early literacy?

Lillian: NCIL’s efforts in early learning are emerging. Our first year has really focused on laying the groundwork. We have been busy:

  1. building our repository of existing resources,
  2. developing professional development materials for educators and families around evidence-based instruction, screening, and assessment for students with literacy related disabilities including dyslexia, and
  3. forming partnerships with key stakeholders and audiences.

NCIL has a number of activities planned this October to raise awareness and improve understanding of dyslexia. I was specifically brought onto the NCIL team because of my expertise in screening and progress monitoring, especially for young DLLs. I am also a co-principal investigator for a research grant, funded by ED’s Institute of Education Sciences, focused on developing a Spanish version of the IGDIs for both screening and progress monitoring. This research and expertise will be wrapped into NCIL’s body of work.

In the second year of NCIL, we will focus more intentionally on early learning, particularly screening and assessment tools.  We are forming a partnership with the American Academy of Pediatrics to develop a simple tool that pediatricians can use to identify risk for reading-related disorders. We are excited to begin work with preschools, including building partnerships with existing Head Start and statewide Pre-K programs that are interested in improving early literacy screening, monitoring, and instruction. I have an early childhood background and it is my role on the NCIL team to ensure we are thinking about how to translate our work so it is appropriate for younger children and the various early learning programs they participate in. Working in an elementary school or classroom can be very different than working in an early learning program. There can be so much variability across different early learning programs—the education level and expertise of the teacher, whether or not they implement a specific curriculum, the overall quality of the program, and much more. You really need to understand the program and meet them somewhere in the middle if you want to be successful in helping them improve their instructional quality and contributions to early literacy. Our specific early learning work scope is still in development, but we are hoping to identify local Head Start and Pre-K programs to partner with and, within these programs, to establish regular early literacy screenings. We also hope to teach evidence-based intervention strategies to teachers within the programs so that once children are identified there is actually a system of targeted and systematic instruction in place to meet their identified needs.

ED:  What are some of the challenges you have experienced in this work, and what strategies have you tried to overcome them?

Lillian: One major challenge is helping practitioners and administrators understand the systematic need for universal screening. Universal screening isn’t just about identifying children who may have a developmental delay or disability; it is also about identifying the instructional needs of all children. We need to do a better job getting this message across.

Related to this is figuring out how we train and support teachers to differentiate instruction. Once you do know where the kids are functioning (e.g., in a multi-tiered system of support, once you know which tier level the kids are), what do you do? How do you differentiate instruction based on children’s instructional needs? This is the research-to-practice challenge. Through research we can identify instructional approaches to meet the needs of various children, but translating these practices into real classrooms and early learning programs isn’t always easy. We need to understand the context and build strong partnerships with programs. We need to understand what programs are currently doing to see how the research-based practices can be embedded. For example, do programs have enough staffing to support the implementation of new instructional approaches? Do programs have an existing curriculum that these practices align with?  We need more people that are focused on this challenge—getting evidence-based practices into the hands of people working with children. I believe what’s crucial to this is researchers taking time to roll up their sleeves and get into classrooms, working directly with practitioners. This allows researchers to partner with programs to work through the practical challenges that always come up.

The final challenge I’ll mention is the need to address and improve the overall quality of early learning programs. I worked with migrant Head Start programs in Utah to implement a semi-scripted curriculum focused on early literacy and language. We found that with the right support they were able to easily implement this early literacy curriculum, and then found that it changed teachers’ practice throughout the day (not just when they were implementing the curriculum). The teachers were hungry for guidance and support on how best to help their children. Again, the message here is that researchers need to become more embedded in the classroom, conducting more focused observations of how what they’ve developed could be implemented in different classrooms and programs. A researcher’s work isn’t done after developing a product or intervention; this is just the beginning. The next critical step is figuring out what support is needed for the product or intervention to actually be translated into daily practice on a large enough scale to actually make a difference.

ED:  What suggestions do you have for others interested in supporting literacy development in young DLLs?

Lillian: My first bit of advice is to understand your own attitudes toward DLLs. This can be tough, but thinking from a strengths-based model is much more effective than from a deficit model, where you primarily think of the kids as not knowing English. Bilingualism is an asset and not a deficit. If we attend to children’s home language in addition to English when it comes to assessment and intervention, we will have a better picture to understand a child’s language and literacy development. This provides tremendous information when determining whether there is a language or literacy delay or disability. Additionally, it is important to learn more about bilingual development. What may be considered a concern with regards to monolingual development may actually be typical when children are developing two or more languages. Finally, seek out bilingual resources and hire bilingual staff.  And simply hiring bilingual staff is only the first step—they need support and training in order to implement evidence-based interventions. I’ve been in many preschool programs where there is a lack of attention to what the bilingual staff are doing. They need:

  1. training about language development, assessment, and interventions and
  2. curriculum and supports in place to guide their instructional practices.

Overall, the big frame is prevention. We need to screen and monitor the progress of all young children and ensure the instructional approaches we are using with young DLLs are meaningful and effective. By intervening early, we will hopefully prevent reading problems from developing down the road. Early intervention is a cornerstone in preventing reading difficulties and I hope to make that a key focus of NCIL. A house is only as solid as the foundation.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

Words of Wisdom

Note: October is Down Syndrome Awareness Month.

Jordon Bills

Jordon Bills

Jordan Bills, M.A., CCC-SLP, is a speech-language pathologist (SLP) at Washington Speech in Fairfax, Virginia. She works with children of all ages with various speech, language, and feeding disorders. She received her bachelor’s degree from the University of Virginia and master’s degree from the George Washington University. You can read more about Jordan’s credentials and accomplishments on the Washington Speech staff page.


Why did you become a speech-language pathologist (SLP)?

In high school, I volunteered at a center for blind and visually impaired children for three summers. I worked side-by-side with the speech pathologists, occupational therapists, and physical therapists at the center. The work they did was incredible and I knew this is what I wanted to do! One child in particular had a large impact on me. He was three years old and unable to respond to his name. By the end of our summer together, he was not only turning toward others when they said his name but also responding to their greeting. I’ll never forget the feeling when I heard him say, “Hi, Jordan!” In that moment, I understood the power of communication. Communication is what connects us to one another. It’s what makes our lives so beautiful! I feel lucky to spend my days helping children communicate more effectively.

Why do you enjoy working with children with Down syndrome?

As a pediatric SLP, I have the privilege of working with children with Down syndrome across their lifespans. This is one of my favorite populations to work with because of the great potential for growth. Every milestone is celebrated, even the small ones, as each child works so hard to develop their speech and language skills. Every child with Down syndrome has unique strengths and interests, which I use to support the development of new skills. I have targeted bilabial sounds /b, p, m/ in functional phrases while playing basketball; used a child’s desire for hugs to teach expanded question forms (Can I have a hug?); and taught subject-verb-object sentences using Disney characters.

With younger children, I spend a lot of time playing on the floor. Children tend to learn best through repeated experiences with real objects and situations. Play is their vehicle for learning. As they enter elementary school, our sessions include more structured tasks focusing on the skills they need to participate fully in the classroom and to interact with friends. My goal for all of my clients with Down syndrome is for them to be able to effectively communicate with friends, family, and professionals across environments. My hope is that improved communication will allow them to experience the joys in life that come from making connections with others.

One of my favorite events is the annual Buddy Walk in Northern Virginia. Attending this event gives me the opportunity to see some of my patients outside of the therapy room. I love watching them with their families and friends participating in a community event. It reminds me of why I love what I do!

What are some tips that you have for families with children with Down syndrome?

Parents and other caregivers are the primary communication partners in a young child’s life. Therefore, parents play a critical role in helping their children develop speech and language skills. Below are some strategies for families to support communication development from birth through early elementary school.

Strategies for Birth to First Word Users

  • Focus on pre-linguistic skills. These are skills a child needs to master before words emerge. They include: joint or shared attention, social referencing (checking parents’ facial expressions to understand how to react appropriately in new situations), turn taking, pointing, sustained engagement and attention, and imitation.
  • Use language stimulation techniques in everyday activities to help your child develop his/her understanding and use of new vocabulary words. Techniques include: self-talk, parallel talk, sentence completions, choices, and communication temptations (actions you can take to set up the environment to tempt your child to communicate with you).
  • Consider a Total Communication This evidence-based approach incorporates speech, manual signs, gestures, pictures, and/or a speech-generating device to help children communicate as effectively as possible while developing verbal speech. This approach can reduce frustration and support long-term vocabulary development.
  • Familiarize yourself with the stages of play. Challenge your child to engage in symbolic and early pretend play.
  • When teaching new words, use real objects or pictures of real objects. Incorporate vocabulary learning into your daily activates.
  • Don’t forget about your child’s oral-motor and feeding skills. Children with Down syndrome are at risk for feeding difficulties. A certified speech-language pathologist can evaluate your child and develop an individualized treatment program to help him/her improve oral-motor skills for feeding.

Beyond First Words: Learning to Combine

  • Research shows children begin to combine words when they reach a single word vocabulary of around 50 words. Ensure your child has a variety of single words (e.g. nouns, verbs, pronouns, social words, adjectives) he or she can use to combine. Keep a record of the words your child uses to monitor vocabulary growth.
  • Continue to build your child’s vocabulary during play and daily routines. Teach 2-3 word combinations and encourage imitation. Children with Down syndrome benefit from repeated experiences with the same activities and vocabulary.
  • Use expansions (adding one word to what your child says) to model phrases. Do this often! It will likely take many repetitions before your child imitates your expanded phrase.
  • Try a pacing board to help your child learn to combine words. Pacing boards provide a visual and tactile cue to remind your child to use two words. They are helpful for children with Down syndrome given their strengths in visual learning. A simple pacing board can be two large dots on a piece of cardboard or thick paper. Point to the first dot and say the first word, then point to the second dot and say the second word.
  • Read often! Try books with repetitive phrases your child can learn and eventually fill in.

Early School Age

  • As your child’s vocabulary and utterance length increases, speech intelligibility often becomes a main concern. Again, a pacing board can be a useful tool. This time, your focus will be on teaching your child to speak slowly and producing each word deliberately while touching one dot on your pacing board. Speaking with a slowed rate can help improve your child’s overall intelligibility.
  • In speech therapy, your child may be working on specific speech sounds or patterns of sounds. Work closely with your child’s speech-language pathologist to continue practice at home. To increase your child’s motivation, incorporate target sounds into highly meaningful words. For example, if your child is working on the /k/ sound, “cookie” and “car” may be very motivating words. Daily practice is key!
  • Use recasts to help your child develop appropriate grammar. Grammatical recasts are when you take your child’s utterance and repeat it using adult grammar. For example, if your child says, “dog eat,” you would say, “Yes, the dog is eating.”
  • Consider AAC (augmentative and alternative communication) to supplement verbal speech. This may increase your child’s ability to be understood, participate in class, and engage socially. It may also decrease frustration.

Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

A Vocational Rehabilitation Success Story

Note: October is National Disability Employment Awareness Month

George "Burt" Petley (left) with co-worker

George “Burt” Petley (left) with co-worker

In recognition of National Disability Employment Awareness Month (NDEAM), Georgia Vocational Rehabilitation Agency (GVRA), a State VR agency which receives funding from the Office of Special Education and Rehabilitative Services’ Rehabilitation Services Administration, is pleased to share Burt’s success story.


Vocational Rehabilitation Success Story: George “Burt” Petley

Burt began his path to employment in a sheltered workshop in 2007, where he did packaging and sorting tasks. Burt’s fellow participants and supervisors said he was dependable and with the support of his sister, Christie, Burt had reliable transportation. While Burt sometimes had difficulty with decision-making, repetitive tasks were an area where he excelled.

In March of 2017, Burt and Christie attended a group meeting at the sheltered workshop with GVRA staff, who presented on Vocational Rehabilitation (VR) services. Sherry Harris, from GVRA’s Augusta office, and Janice Cassidy, from the Athens office, explained supported employment and job coaching can be conduits toward competitive integrated employment and greater personal independence. Sherry and Janice explained that, in an inclusive workplace, individuals with disabilities would have the opportunity to earn the same wages as their coworkers and would not necessarily have to sacrifice services they may receive through a Medicaid waiver. Burt also learned about GVRA’s Work Incentive Navigators, who help individuals determine how going to work impacts disability benefits.

George "Burt" Petley

George “Burt” Petley

After hearing about the big picture and the spectrum of VR services available, Burt left the sheltered workshop program where he had spent the past ten years. He applied for VR services in June of 2017, first enrolling in a program where he learned socialization and independent living skills and took classes like American Sign Language, pottery, cooking, woodworking, healthy living, social skills and employability. That experience not only proved to be a valuable training opportunity for Burt, but it also led to a job offer when he was hired as a Woodworking Associate. Burt now works 13.5 hours/week earning minimum wage refurbishing furniture and looks forward to working more than 20 hours/week by the end of the year.

According to Burt’s family, he is content as a woodworker. Janice Cassidy shared that “Working with Burt has been a collaborative effort, but in reality, he is truly the star of this story. It began with his simple desire to do something other than continue to work at a sheltered workshop where he had worked for 10 years. Yes, he was certainly given information, told of resources and received supportive services from those helping him. Ultimately though, the person who took the necessary steps to move forward toward achieving his work goal was Burt. He exemplifies GVRA’s definition of true success. He made independent choices for his life, gathered necessary information, sought out potential resources and acted on choices made to realize the goal he was working toward. We wish Burt continued success in his work.”

For more information about the VR program in Georgia, please visit GVRA’s website.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

Chris Pope
Posted by
WIOA Implementation Team Facilitator Rehabilitation Services Administration U.S. Department of Education

A Teacher’s Perspective on Advancing Dyslexic Education

Note: October is Learning Disabilities/Dyslexia/Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month.

Alison Pankowski

Alison Pankowski

Alison Pankowski currently trains teachers in her New Jersey district in the Wilson Reading System and is an International Dyslexia Association (IDA) Certified Dyslexia Therapist. She is the current Vice President of the New Jersey branch of the IDA.  Mrs. Pankowski was a contributing member to the New Jersey Dyslexia Handbook, released in September 2017.


As a dyslexia specialist in my school district, I build the knowledge base of my colleagues regarding early identification, structured literacy intervention and essential accommodations for students with dyslexia.

I explain, often, that:

  • “Yes, you can identify students at risk for dyslexia as early as five years old.”
  • “Yes, teachers should provide instruction in phonemic awareness in second grade to continue to build reading skills.”
  • “No, using audiobooks is not a crutch; it provides access to grade-level text for struggling readers and levels the playing field.”

While it is true that legislative efforts in my home state of New Jersey have helped to bring these types of conversations to the local school level, there is still much work to be done to ensure that our state dyslexia laws, enacted in 2013 and 2014, are implemented effectively.

There are still many persistent misconceptions about dyslexia, and much of the implementation gap exists because professionals cannot act upon what they do not know or understand.

The truth is higher education often does not include coursework on dyslexia in teacher preparation programs, so local education agencies must either figure out how to build capacity or wait until guidance is provided.

But where would this guidance come from?

In New Jersey, I was invited to join a group of individuals tasked with creating dyslexia guidance. This group consisted of practitioners with expert knowledge in the field of dyslexia, including learning disabilities teacher consultants, speech and language pathologists, psychologists, higher education professors, assistive technology experts, parents and N.J. Department of Education representatives.

New Jersey Dyslexia Handbook

New Jersey Dyslexia Handbook

We worked together for more than 19 months to create the “New Jersey Dyslexia Handbook” with the intent to:

  • Build an understanding of dyslexia and related difficulties with written language;
  • Demonstrate how to identify and remediate students with dyslexia and other reading difficulties; and
  • Inform both educators and families in best practices to support students with dyslexia and other reading difficulties.

We met monthly to discuss how to best provide this understanding and specialized knowledge without overwhelming or alienating educators and families.

Our meetings involved thoughtful, often passionate conversations about what we had experienced or had heard from others around the state; both positive and negative, regarding how schools had chosen to implement the laws passed by the state.

Usually these discussions resulted in written revisions to chapters drafted on early screening, intervention, assessment, accommodations and assistive technology. These discussions then led to more discussions and more revisions!

As committee members with experience in the field, we met with educators and families across the state throughout the process to learn more about what guidance they were seeking and to assure them that it would be coming soon. We worked diligently to craft a resource that would provide best practices to meet the needs of their struggling readers.

The N.J. Department of Education released “The New Jersey Dyslexia Handbook: A Guide to Early Literacy Development & Reading Struggles” Sept. 25, 2017—just in time for Dyslexia Awareness Month in October.

My hope is that this handbook will be a giant step forward in closing the gap between the research on dyslexia and the implementation of best practices in the school and classroom.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

Alison Pankowski
Posted by
Alison Pankowski is an International Dyslexia Association (IDA) Certified Dyslexia Therapist and is the current Vice President of the New Jersey branch of the IDA.

State Transition Services for Students with Disabilities: Preparing for Success after Graduation

Note: October is National Disability Employment Awareness Month

OSERS funds the National Technical Assistance Center on Transition (NTACT), a technical assistance center that connects the work of local education agencies, state education agencies, state vocational rehabilitation (VR) agencies, and VR service providers. NTACT provides support to these entities in implementing practices ensuring students with disabilities graduate prepared for success in postsecondary education and employment. We invite you to read more about the work of NTACT on their website. In recognition of National Disability Employment Awareness Month, this post highlights successes across the country, made possible by NTACT’s activities related to transition planning, graduation, post-school success, and data analysis and use. It also highlights critical resources developed by the center. Follow more activities from NTACT by searching the #transitionta and #NDEAM hashtags on social media.

Arkansas 

Arkansas’ core leadership team for its intensive technical assistance (TA) work with NTACT includes partners from education, VR, career technical education, and blind services. They are implementing the Communicating Interagency Relationships and Collaborative Linkages for Exceptional Students (CIRCLES) model of interagency collaboration in two school districts this year. Through these efforts, students and their families will be connected efficiently to services, transportation, work-based learning experiences, postsecondary education, and jobs!

Alaska

Alaska’s Interagency Transition Council (AITC)—a product of the state’s TA partnership with NTACT—has supported four times the number of Transition Camps, hosted by Alaska’s state VR agency, Tribal VR, and local education agencies this year. Transition Camps provide three full days of career development and work readiness activities, and focus on entrepreneurship and subsistence living, as well as more traditional employment opportunities. The AITC is also engaged in a summer work program, through which 166 students completed more than 6 weeks of summer employment. Additionally, half of students supported in internships through state VR have achieved full or part-time competitive employment—one participant in this program achieved their GED and five are currently enrolled in postsecondary education. Finally, the Tribal VR agency in Nome, Alaska supported an enterprise to provide students work-based learning experiences while in high school.

Nevada

Nevada’s VR Bureau and Department of Education have partnered to develop interagency agreements at the local level and to host cross-agency professional development activities. These steps are part of their overall efforts to increase the number of students with disabilities accessing pre-employment transition services (Pre-ETS), intended to greatly improve integrated employment outcomes. Since initiating these efforts, the state has recorded a 69% increase in the number students engaged in these services, which prepare them for competitive integrated employment. They had set out to increase this number to 600 students by June 30, 2017, a goal which they have far exceeded. Currently there are around 883 students in the state receiving Pre-ETS!

North Dakota

NTACT has assisted North Dakota’s education and VR agencies to develop a training guide for job coaches. One large and three rural districts will participate in this professional development opportunity, intended to increase the number of students receiving quality job coaching and workplace readiness skills, thus preparing them for competitive integrated employment.

Resources from NTACT

Things People Say

Note: October is Down Syndrome Awareness Month.

Jessica Wilson and her son, Jasper

Jessica Wilson and her son, Jasper

A guest blog by Jessica Wilson. Jessica and her son, Jasper (aka Jaz, Jazzy, the JazMaster, or Dude!), live in a cozy house of fur with two crazy dogs and two lazy cats. Their favorite activities include singing movie hits, dancing in the kitchen, snuggling and traveling the world together. Jessica is Director of Communication and Dissemination for the Center for Parent Information and Resources (CPIR) and Resources for Access, Independence and Self-Employment (RAISE) projects with the Statewide Parent Advocacy Network (SPAN) in New Jersey.


Number One. “Did you know?”

They never complete the thought, as if just looking at him implies what they’re really asking. I ache to play dumb: Know what? That he would almost never cry as a baby and be a champion sleeper? That he would love to swim but hate to play soccer? That I could love him ‘til it hurts and still get so annoyed by some of his antics? As obnoxious as my brain screams for me to be, I simply answer, “No. After losing the first one, I didn’t want to take any chances with this very wanted baby.”

The mention of my previous sorrow precludes them from saying anything directly about those tests, so I leave it at that. I resist ranting about warped concepts of perfection or the technologies the medical community pushes that are incapable of measuring the value of those born “dappled.” If I launch into my diatribe, their eyes glaze over as they nod in the faux agreement children give their parents when they just want the scolding to stop. I can always tell when they’re thinking, “I would have the test.” I couldn’t guess what they would do if it were positive.

Number Two. “My sister’s/cousin’s/brother-in-law’s/landlord’s daughter/nephew/classmate/neighbor is ‘like him’.”

What, rakishly handsome? Lucky them. A consummate flirt? Better watch out! The self-appointed town mayor, greeting every person or animal we see on the streets? Good luck getting anywhere quickly with such a gregarious kid.

I suppose it’s an attempt to connect, a way to say “he’s okay” because they know someone who knows someone who… But sharing an extra chromosome doesn’t make anyone like someone else any more than two people having green eyes does. Don’t tell me these six-degrees individuals are “like” each other. They aren’t.

Number Three. “He’s so high-functioning.”

Yeah, far more than I am at 3:00 a.m. “MOMMY!” “urgh…?” “WHY ARE YOUR EYES CLOSED?!” “I’m sleeping, baby.” “WHY?!” “unnnhhh…” “READ TO ME!!!!” (seriously?)

Number Four. “Funny, you can’t see it.”

What’s there to see? His almond shaped eyes that look through me as the spark of laughter flickering within them sears my soul? His cute little hands with that long crease across his palms holding mine, petting the cat, learning to write his name, wiping away tears when he’s mad? The orthotics helping reshape his desperately flat feet?

What exactly are you looking for that will legitimize him in your eyes? Maybe I should carry the envelope with the verdict handed down by some anonymous technician. Perhaps the letter from the state when the lab automatically reported his existence to the county health department “for statistical purposes.” What can’t you see? He’s a kid, growing up loved. What else are you looking for?

Number Five. “I’m sorry.”

You should be. You’ll never hear the thoughts he speaks to me with his smiling brown eyes as he tilts his forehead to rest against mine. You’ll never drink in the heat that radiates from his head or taste his soft hair on your lips. You’ll never be awakened (again) at 3:00 a.m. by the hot air from his mouth on your face as he whispers, “Mommy, I want snuggles.” You’ll never know how it feels to celebrate every jump forward in development that other parents take for granted, but when he finally does it, it’s a very, very large molehill.

You should be sorry that you can only see back in time. This is a new era with new opportunities and new ideas about potential and worthiness. I’m only sorry it’s taken this long and that we still have so far to go.

Number Six. “That’s awesome!”

Thanks, Brian—you are the right kind of friend. May everyone with a kid “like mine” know a man like you.

Number Seven. “I don’t know how you do it.”

I’m his mother. Still confused?

Things I Say.

“I’m so proud of you.” “Boy, you’re handsome!” “Why won’t you let me cut your nails?” “TURN THAT DOWN!” “Wanna go bowling?” “Sweetheart, don’t let the dog beg like that.” “Would you please put this stuff away?” “You’re just too good to be true/Can’t take my eyes off of you.” “No, I don’t want to smell your feet.” “I love you, my sweet angel. You’re my heart and soul, my love and my life.” “You know you drive me nuts, right?”

Number One.

“I’ve loved my son since before he was ever born. What else is there to say?”


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

No Limits in My Life

By Elizabeth Rouse, Central College Class of 2020

Note:
October 12 is World Sight Day and October 15 is White Cane Safety Day / Blind Awareness Day

Elizabeth Rouse

Elizabeth Rouse

Elizabeth Rouse is a 19-year-old sophomore at Central College in Pella, Iowa. She is pursuing a bachelor’s degree in English with the intention of attending law school in the fall of 2020. In her free time, Elizabeth participates in Bridge Club, belongs to the sorority Zeta Upsilon, and volunteers as a YoungLife leader in her local high school community. 


When I was about five-months-old, my daycare provider noticed I was not tracking things with my eyes in a way that was similar to other babies my age. After a visit to my pediatrician that led to a visit to a genetic specialist at the University of Iowa, my parents discovered that I have Leber’s Congenital Amaurosis (LCA), a genetic disease that stopped the rods from forming in my eyes. This recessive genetic disease is not common. About 3,000 people in the country have it. My vision is 20/400 in both eyes, and it is something that cannot be corrected with glasses. The “cure” is genetic replacement therapy. Being legally blind has proven to be a challenge, but my parents never allowed me to use it as an excuse to sit on the sidelines. They pushed me to excel in everything I chose to do, and they helped me and others who supported me to succeed.

In elementary school, my accommodations were simple. Verbalizing by the teacher, brailled calendars, and other classroom items supported my participation in classroom activities, and, of course, I used a white cane in the hallways. I had a paraprofessional, a wonderful woman named Bonnie, who learned braille and went to trainings to best support my needs and those of my teacher. Over the years, my friends and classmates got used to my needs and pretty much got out of my way in the hallway, limiting the use of my cane indoors. This helped me feel much more like the other students. I am very grateful that my school was small enough to allow me to get to know everyone and create such a level of comfort and success.

In middle school, the challenges began to come more frequently as the curriculum got harder and travel became more a part of my daily experience. My paraprofessional continued to support my needs but in a different way. She went to my classes with me to help me learn how to develop specific skills, such as taking notes. Additionally, class materials, such as quizzes, written up by teachers ahead of time, were sent to be brailled by the Iowa Department of the Blind library services. Any materials needing to be brailled that could not be planned ahead of time were transcribed on sight by my paraprofessional.

My textbooks were also available in braille, but these presented a challenge in and of themselves. Because braille takes up a ridiculous amount of space, a normal sized textbook for history or science could be anywhere from 25 to 40 volumes in braille. This made carting my materials from class to class a bit more difficult. The administration in my school allowed me a rolling backpack to lessen the stress on my back. Additionally, I was given a bigger locker than most of the other students to compensate for my larger amount of materials. While I did not want to use my white cane, I found I had to use it to get used to traveling in the middle school as well as let others know of my presence. Eventually, I was able to use it infrequently, as I had done in elementary school.

When I started high school, I was terrified. As I have an older brother, I knew some of the classes I would have to take would be a bit difficult. I am forever grateful to the teachers I had my freshman year as they made my transition to and experience in high school much less stressful. I specifically remember having a biology teacher who went above and beyond to make sure I was included in the learning experience just as much as the other students in my class. The teachers and I learned how to learn together in many ways. Flash drives for exchanging content and assignments became an important tool for us.

Additionally, I was a bit nervous about extracurricular activities. Most of my friends were athletes, but I could not participate in volleyball, basketball, or other fast-paced sports. However, this caused me to seek participation in other activities. Throughout high school, I was an avid member of the choir and theatrical programs in my school. I led my team in a battle of the books club competition, and I was the president of Family, Career and Community Leaders of America. I was super stoked my sophomore year when I decided to become a member of the wrestling cheerleading squad and found much success.

I graduated in 2016 valedictorian of my class and received multiple high-value scholarships to different universities. I chose Central College in Pella, Iowa. As a sophomore, I could not ask for a better place for me to earn my undergraduate degree. I plan to major in English with minors in theatre and religion. My long-term plan is to go to law school.

What I have learned in my life is that the only limits I have are those I put on myself and there is nothing embarrassing about asking for help. My journey so far has helped me understand that achieving greatness is not tied to my gender, race, socioeconomic status, or any accommodation I may have gotten in order for me to have a level playing field. Greatness is achieved because of effort and discipline. Those come from my own desire to be the best at what I choose to do, vision excluded.

Thank you so much for taking the time to read my blog post. If I could teach everyone in the world one thing, I would like to project that just because a person has some limitation that is out of their control does not mean they are less of a person. Given the right tools and supportive people who want to see them succeed, the possibilities are limitless.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

How Having ADHD Made Me a Better Advocate for My Daughters

Note: October is Learning Disabilities/Dyslexia/Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month.

Jessica-Gordon

Jessica Gordon

A guest blog by Jessica Gordon, a parent of children with learning and attention issues and Regional Manager for Understood at the National Center for Learning Disabilities.


“She is smart, but she just needs to apply herself.”

If you looked back at my report cards in elementary school, every single one would say that. Even after recognizing that I struggled to pay attention, my family assured me that I didn’t have attention-deficit/hyperactivity disorder (ADHD) because I was able to watch television for long periods of time.

My experience isn’t as unique as I would hope. In fact, according to The State of Learning Disabilities report from the National Center for Learning Disabilities, 78% of parents believe that any child can do well in school if he or she just tries hard enough. And 33% of educators believe that sometimes what people call a learning or attention issue is really just laziness.

For me—and probably for many kids struggling in school—that wasn’t the case. I was applying myself and doing the best I could, but I wasn’t able to focus or pay attention. My teachers were frustrated that I would score in the 90th percentile on standardized tests but fail to turn in spelling tests and math worksheets. Through trial and error, I found strategies to keep myself organized in school. But by the time I went to college, I sought an evaluation and was told that I do, in fact, have ADHD.

Thanks to advances in research and more experts exploring these issues, our understanding of ADHD has grown tremendously over the past few decades. According to Understood.org, girls are not identified with ADHD as often as boys, and they are often identified much later. The signs can look significantly different in girls and boys. For example, girls may not display the behavior challenges that boys do and might, instead, be chatty, disorganized, or emotional. And, much like me, because girls work hard to compensate for their challenges, it can often be overlooked.

Now, as a mother of three girls, nothing is more important to me than knowing my children’s strengths and challenges and advocating for what they need. When my oldest daughter was in second grade, she began to exhibit the same signs I did at that age. Recognizing those familiar signs, I knew I had to take action. I wanted her to have the same understanding of herself it took me decades to develop.

We went through with an evaluation, and my oldest daughter was diagnosed with ADHD—just like me, but much sooner. My middle daughter was also diagnosed when she reached second grade. And my youngest, who struggles with reading and writing as well as attention, is in the process of being evaluated right now.

When I was younger, I became an advocate for myself only after the system failed to recognize my struggles. But I don’t want that to happen to my children. Instead of making assumptions about what their future might look like with learning and attention issues, I make a point to consider their strengths, their interests, and their ideas about themselves. I want to ensure that my children—and all children—are on a path to understanding themselves and harnessing their strengths and talents.

Having ADHD myself and raising three children with ADHD is a unique challenge, and one I think many parents can relate to when learning and attention issues run in the family. But it is true that parents are their child’s best advocate. When your instincts tell you that something is going on under the surface, it’s important to trust that. It’s critical to seek out professionals who will listen and help you support your child in the way you know you need to.

I often wonder how different my life would have been if my parents and teachers had recognized my ADHD earlier and provided the accommodation and supports I needed all those years ago. Fortunately, my children won’t have to wonder about that. And I hope other parents trust their instincts, listen to their children, and follow a path that gets them and their child the supports they need.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.

Jessica Gordon
Posted by
Regional Manager for Understood, National Center for Learning Disabilities

From Daughter’s Advocate to National Advisory Board Member

One mother brings personal experience to the new
National Center for Improving Literacy

Laura Shultz boating with her daughter, Catherine.

Laura Shultz boating with her daughter, Catherine.

Laura Schultz is co-founder of Decoding Dyslexia Maryland and previously worked as a Congressional Staffer for Rep. Helen Delich Bentley and later as the Director of Federal and State Government Relations for a national trade association in Washington, D.C. She has a background in public policy and consulted for a Florida-based public relations firm for many years before “retiring” to focus on dyslexia advocacy to help children who struggle to read, write and spell in public school. She has two children, one a senior at Leonardtown High School and the other a junior at the U.S. Military Academy. Her husband is active duty Navy and they are a proud military family


Something was wrong, but no one could quite figure out what to call it.

At age three, my daughter Catherine spoke very few words compared to her brother. Early evaluations revealed that she needed speech and occupational therapy services.

Catherine displayed behavioral issues including aggression, which the school psychologist later attributed to possibly too much stimulation. At other times, she was withdrawn. She was held back in preschool because of these issues.

When she entered kindergarten, Catherine had meltdowns because of her frustrations with language.

What I saw was her having difficulty finding words and using incorrect language, which resulted in a scrambled output of the words she could find.

After three years in preschool and a year of kindergarten, she could not identify her letters and sounds, write her own name or spell simple words. I felt strongly that we were looking at a reading problem, and my advocacy finally resulted in her being found eligible for special education as a child with a “specific learning disability.”

As Catherine prepared to enter first grade at age seven, I was frightened and frustrated feeling that my child was in crisis and it did not seem that the district’s special education personnel knew how to address her reading and writing needs.

The years of pull-out services, small-group instruction and reading interventions produced few results.

Unfortunately it would take another six years from the time she was identified as having a “specific learning disability” before we understood her specific learning disability was dyslexia.

One year her teacher pulled me aside to share the Patricia Polacco book, “Thank you, Mr. Falker” and encouraged me to read it to Catherine. It was the first time anyone almost mentioned the common learning disability by name.

By fifth grade, our developmental pediatrician formally diagnosed Catherine with dyslexia. We shared the news with her school team hoping that we would finally be able to get the appropriate instruction in place for our daughter.

Unfortunately, we still found it difficult to bridge the divide between the evidence-based interventions being recommended and the programs and expertise available in our school.

By seventh grade, we had to move on to seek private reading and writing instruction for Catherine.

Through pinpointing Catherine’s dyslexia and getting her the proper services she needed, she is now a high school senior pursuing a certification in Computer Aided Design and Drawing (CADD), taking two English courses and making plans for college.

Laura Schultz and daughter, Catherine

Laura Schultz and daughter, Catherine

Students like my daughter sit in every classroom in every school in every state. They are ethnically, culturally and socio-economically diverse. Many of these students will have access to the resources our family ultimately pursued and that is good, but truth be told, many more will not and that is a problem.

Unidentified dyslexia often creates social and emotional difficulties for struggling children. Parents’ and schools’ lack of understanding and awareness of dyslexia and other disabilities can exacerbate a child’s struggles unnecessarily. I knew other families and schools would benefit from knowing about early reading interventions that included phonological awareness and decoding instruction—this type of instruction would not only reduce the underlying cause of a child’s anxieties or challenging behaviors, but would also teach them to read.

My family’s experience, in what I would describe as an excellent public school system, motivated me to reach out to other parents of children with dyslexia. I knew that many of these families were experiencing similar situations and that collectively we may be able to raise awareness and bring much needed resources to our schools and communities.

We established Decoding Dyslexia Maryland, a parent-led grassroots movement that offers awareness, support and advocacy for children with dyslexia, their parents and educators.

Through my advocacy work with Decoding Dyslexia Maryland, I was asked to serve as a parent stakeholder on the Family Engagement Advisory Board for the National Center on Improving Literacy* (NCIL), which was funded by Office of Special Education Programs in September 2016.

NCIL is an important component of the U.S. Department of Education’s mandate under the Every Student Succeeds Act (ESSA) to support students with learning disabilities such as dyslexia. The center is tasked with:

  • Developing and/or identifying tools to screen for and detect reading challenges early;
  • Identifying evidence-based literacy instruction, strategies, accommodations and assistive technology;
  • Providing information to support families;
  • Developing and/or identifying professional development for teachers on early indicators and instructional strategies; and
  • Disseminating these resources within existing federal networks.

Schools today are searching for information and assistance in implementing the evidence-based instruction outlined in ESSA and required by many of the new dyslexia laws passing in state legislatures across the country.

As I near the end of my family’s personal pre-K-12 journey, I’m excited to be able to offer NCIL the benefit of my daughter’s experiences to help change the way students with reading challenges and dyslexia are identified and taught to read.

It’s my expectation that NCIL, in collaboration with parents, educators, community partners, and reading researchers, will offer our public schools the information and guidance they need to bring the science of reading into their classrooms and to close the research-to-practice gap that sometimes hinders their ability to deliver best practices in literacy instruction to the students that need it the most.

This October, Learning Disabilities Awareness Month, is the perfect time to learn more about the mission of the NCIL and to spread the word to your schools and communities about dyslexia and this new research-based resource. Encourage teachers, principals and families to visit the NCIL website and make suggestions about the types of information, tools, trainings and resources that are most needed.


* The National Center on Improving Literacy is a partnership among literacy experts, university researchers, and technical assistance providers, with funding from the U.S. Department of Education.


Blog articles provide insights on the activities of schools, programs, grantees, and other education stakeholders to promote continuing discussion of educational innovation and reform. Articles do not endorse any educational product, service, curriculum or pedagogy.